A selection of comments by those undergoing INH therapy, not exactly a happy bunch of campers...link
lidmarjon, 25-34 Female on Treatment for less than 1 month (Patient)
When i strated taking the medication i was fine. i was taking my diuretic in the evening and isoniazid at 11:25am. i noticed that just about 1 hour or so before my next dosage i would become dizzy and weak. about an hour or so after taking it i would be myself again. but i didn't felt comfortable i felt to tired and weak. i went to my doctor and took me off the medication. in 2 wks im supposed to go back and get another medicine and im praying to GOD that everything goes well the 2nd time around. i really dont know if this is ok but i guess the doctors didnt want to take a risk. the doctor even told me that it was not a common symptom but that i had to get off the medication. i hope all goes well.
TJ, 35-44 Female on Treatment for 1-6 months (Patient)
It's been a few years since taking INH for latent TB. I recall severe joint pain/swelling and various other ailments. I still can't get rings over my knuckles. My life/health is still "not right" I also fear lupus, as my recent bloodwork seems to indicate. I've also done some research on ganglion cysts I now have & there may be a link to the INH!?! Thankfully, no other friends/family members have ever had a positive PPD (I still question the when/where I could have picked it up). My xrays were clear & I have no other signs of TB. Because the side-effects were making life pretty miserable and my liver enzymes were beginnig to become affected, my public health nurse gave her "blessing" for me to quit after 4-1/2 months...I'm thinking not soon enough!
TB boy, 25-34 Male on Treatment for less than 1 month (Patient)
I was about to start taking this medication for inactive TB, but I read all the side effects and the comments of many people that had taken this medication and I refused to do it. I believed the medication should be take if become active only. If we take the medication, whatever, we are not 100% immune to develope active TB and the health risks fot taking it are very high. I will suggest anyone with inactive TB and normal to strong immune system to avoid to take it until becomes active. That might never happen. Some patients live with inactive TB all their lives and never notice it. My personal opinion.
45-54 Female on Treatment for 6 months - 1 year (Caregiver)
I have been taking this for 8mo's now I have experienced head aches body aches fatigue moodiness & cough now I am noticing hair loss & breakage, anytime I have said this to my doctor she says it's not a side affect so I quit telling her this was an on the job exposure & they haven't done a thing except supply the meds I haven't had blood tests done I have asked to see a specialist & as of yet have not received a reply, don't know if meds have worked, easy to take because it's a pill difficult because of why I take, satisfied?? how?? why?? satisfied because I get to take a med that is so serious nobody monitors & it was negligence that caused me to be exposed..nope not satisfied.
Female on Treatment for 6 months - 1 year (Patient)
i only comment with stars because it requires it i have taken this treatment for only one week and from the begginning to now i suffer severe headaches, continued loss of appetite, extreme tiredness/fatigue is there anything to counter act this it sure isn't worth going through for a preventitive. at this rate i'd rather treat if it ever became active
may, 25-34 Female on Treatment for 6 months - 1 year (Patient)
after taking this medication for 9 mos. i've developed an allergy or sensitivity to sun! I immediately breakout in sun-blisters after 5 minutes of exposure to the sunlight.
55-64 Female on Treatment for less than 1 month (Patient)
I have been taking Isoniazid for two weeks now. My joints are painful and I am worried about lupus, it is one of the side effects of this drug. My sister has lupus now that she got from one of her heart medications. I am going to press my Dr for a QuantiFERON-TB Gold blood test before I will continue with this treatment. My sister has undergone two hip replacements and is always off of work because of the lupus. I had the BCG vaccine as a child and am wondering if that is the cause of my positive skin test. My chest xray is clear.
Jerehda, 13-18 Male on Treatment for 6 months - 1 year (Patient)
It makes me feel like crap after I take it. I get blured vision that come with headaches.
cdbene, 25-34 Female on Treatment for 1-6 months (Caregiver)
My 12 yr old son is taking this medicine 2x a week. He takes 3 tablets on Monday and then 3 on Friday. The bad part is I have to take him to town to take it. They will not let me give it to him at home. He had a positive skin test but "does not have TB" (thier words not mine)and this is suppose to be a "preventive measure." Its nothing but a pain in the butt.
45-54 Female on Treatment for 6 months - 1 year (Patient)
I have latent TB and decided to take the meds as I have niece with leukemia and has recently had a transplant. I did not want to inadvertently infect her so I have been taking this for almost 6 months. After experiencing fatigue and itching when taking every night, my doc had me take it every other night. That helped the fatigue and the itching went away after a few weeks. The one thing that I found out from my pharmacist is to avoid pineapple and raisins. they contain a certain ingredient that counter-acts the meds. Also to avoid ibuprofens and tylenol to reduce the risk of liver problems
(Patient)
I am having some of these side effects and will call my doctor today. Thanks for your info. I thought I was going crazy.